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After diagnosis #glennthecancerwaarrior
, colon collorectal cancer BRAF information for patients, public and broader
awareness. My cancer journey as a stage 4 terminal BRAF sufferer- glennthecancerwarrior
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#glennthecancerwarrior -terminal BRAF MSS
After Diagnosis - Managing with Treatment and surgeries
Here's my first hand experience on those surgeries I've hd. Thigs that have helped and hopefully might help sharin.
Your phsyio and cae will be key and some of these maybe supplemental with their direction.
Right hemi
I'm not medically trained so this is not advice but simply some principles Ive followed and adapted according to surgery
type and situation.
Mobilse in hospitable as soon as possible Keep as good as possible i.e leg and upper body ready for when weaker.
If feel really tired ask for test on ir0n levels I found seeing my bloods useful to see iron levels, sodium etc..
for some surgery like SIRT you may need to build weight a bit in the knowledge harder to eat after. Speak to your care team
before making any changes
Use a towell pillow on stomach to help with breathing, coughing and general comfort
Your physio should by now be helping you Getting mentally strong ahead of surgery. Individual choice as to what
works for them. Here's what I found useful. Reiki, Local councelling, sleep meditation
breathing techniques. The later especially useful to
with calmness. Both for you and staff
Mobilise out of bed and hydrate. Also with breathtaking and coughing.
tje first times will hurt but never keep with your breathing exercises and drinking. Starting with all sips
At that stage once comfortable progressing to food. Initially first drop will feel painfull but
pains ease for me over about 12 hours
The first meal It was morning and I felt ready. not ready for much but some food.
I choose a banana and had small mashed up pieces with water over around 2hrs
Tips for after discharge
Use the towel pillow
- Several I found help speed of reapir of Op stitching, pain and breathing.
This one helped with coughing and comfort. With the coughing it will hurt but with control of freuqnecy
will help.
Breathing Something I wished I'd hve focused on before. Rgular use of
breathing techniques similar to box breathing. To get back healthy lung function
Stitching repair I wanted stitching to heal the wound as soon as it could.
So keeping the wound site dry, sleeping in the best position. for me was propped up high on my back.
being careful with getting onto bed or off and not doing anything rigourous
Re-training stomach to eat
You'll likely be going through the stages of soft food low residue.
For me I found starting with baby food recommended from 3 to 6 months before
progressing onto clear soups.
I then went through a large blended food stage which allows for more options. Usually
overcooked veg blended into soups. Blended eggs and avacado and bread.
Focusing on these things helped as my recovery time, both for time spent in hospital
and to chemo cycle (stiching looked reasonably healed was half the norm
